Hello everyone, I am the mother of a near 9 year old daughter whose
cord blood we banked at birth. Since that time she was diagnosed with
autism. I have waited for years on information showing when possibly
using her cord blood to help her. Last summer I read of Mary
Schneider's son recovering from cerebral palsy. I have since contacted
many, many people and oncologists hoping someone would help me by
simply giving her her own cord blood. I've specifically clarified I do
not want her to undergo chemo/radiation to kill anything, but a simple
infusion. I have been shot down at every turn.
I guess at this point I'm trying to figure out why I cannot find one
competent physician in the entire United States willing to prepare our
cells. I even have a physician willing to administer the IV, he just
doesn't have the equipment/expertise on preparing the blood. Heck,
even I could give the IV. She receives them every 2 weeks for
metabolic issues as it is. She doesn't even cry receiving them.
I'm not asking for anyone to guarantee it would help. I'm not asking
for a physician to even think it will help. All I'm asking is for my
child to have her own blood returned to her, in the possibility it may
help her. We know she has a genetic clean bill of health from the
genetic testing performed on her. We haven't asked for our insurance
to be billed, we're offering cash payment. Still, we are shot down as
our daughter continues with health problems. It's funny, if it were
cancer people would be knocking down the door to give us
"experimental" treatments, yet with the word autism I get shot down at
every turn. Is my daughter's life no more important than a child with
cancer or cerebral palsy?
If anyone could help me, I would greatly appreciate it. All I want is
for my daughter to have a shot at improvement, just like everyone else.
Debi
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StemCells subscribers may also be interested in these sites:
Children's Neurobiological Solutions
http://www.CNSfoundation.org/
Cord Blood Registry
http://www.CordBlood.com/at.cgi?a=150123
The CNS Healing Group
http://groups.yahoo.com/group/CNS_Healing
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